There are some weeks that are so action packed that I swear they just fly by in the blink of an eye. This past week was definitely one of them. It consisted of the YSC "In Living Pink" fashion show, lunch & dinner dates with friends, being interviewed and photographed by the Detroit Free Press (yes, you read that right! more on that later...), the amazing "Rocking For A Reason" benefit concert, an appointment with another new doctor, celebrating a friend's birthday, a fabulous 3 hour coffee date with a friend and fellow cancer warrior, and the beginning of a young adult support group that I helped initiate. Whew! Don't get me wrong, I sleep in late and get in as much rest as possible in between, but boy does the calendar fill up.
Last Thursday night was the "In Living Pink" fashion show benefiting the Young Survival Coalition of metro Detroit. I really had no idea what I was signing up for but it turned out to be a really fun night. The YSC women did an incredible job turning the Royal Oak Farmers Market into a beautiful venue and they raised a lot of money for a wonderful cause. I had a great time pretending to be a model for a night, along with a few other survivors that are involved in YSC. Thank you so much to my family and friends that were able to come out and cheer me on as I channeled my inner Heidi Klum when I hit the runway. ;)
Thanks to the talented, Miss Kyle Dorcey for the beautiful photos and to Kristy of YSC for the group shots included below.
BreAnne and me - she is the talented designer that created my dress
Just a few of the other wonderful survivors I have met through YSC - Lori, Lisa & Kristy
Some of the women of the metro Detroit chapter of YSC
What a fun (and exhausting) night. I have realized that I can no longer stand for hours on end, especially in high heels. My body, particularly my back, paid for it the next day but it was worth it in the end and I felt much better after a lot of extra rest.
Sunday marked the incredible "Rocking For A Reason" benefit concert that the fabulous, Patty LaBella spearheaded for us. Wow, I don't even know what to say about it...the entire event was completely overwhelming and uplifting. It was truly remarkable to see how many family, friends and community members came out to support us and show their love. I have no clue how many people were there at one point or another throughout the evening, but it was just so touching to see all of you and to feel the love from so many people. What also completely blew me away was not only the amazing generosity of everyone that came to the event but also that of all those that donated great items for the auction. From family members, to those that I have never even met, to local businesses, to a huge corporation such as Martha Stewart Living ---I couldn't even believe the donations that were coming in for the auction. And on top of that, I was so touched and humbled by all of those that placed bids and bought raffle tickets -it was truly wonderful.
To be honest, this type of thing is difficult for me. It is hard to go to these events and be the one that they are benefiting. I wish I was attending to help someone else out - that it wasn't me that was in all the pictures and who's name was on the poster. I am not comfortable in the spotlight like this and I am definitely not comfortable accepting this kind of help from others. I feel like I never know how to adequately thank all of you - how to say what's really on my mind and in my heart. There are just no words that accurately describe my gratitude. Please know how much this event meant to Mike and I and how thankful we are for it. It will keep our spirits soaring high for a very long time.
A HUGE special thanks to Patty & Joe LaBella, Eric Kozlowski (you are awesome!), The Berkley Music Company, The Berkley Front, the adorable little Blake, Katie Grace, ONNA, The High Strung, and all of the others that helped make this event a reality. Thank you all so very much!
Me & the bro
My awesome brother in-law, Dan and his wonderful girlfriend, Melissa with Mike & I
After spending much of Monday in bed recuperating, I met yet another new member of the medical team on Tuesday. Dr. R is Physical Medicine & Rehabilitation (PM&R) doc at Beaumont. He is the one that will be following me closely to monitor for any lymphedema so our visit included a lot of pre-op measurements and physical examination. We also discussed stretches I can be doing to prepare for surgery, exercises to start doing after surgery, and exercises and precautions I need to take with my spine due to the fragile nature of my vertebrae and my increased risk for fractures from here on out. I think Dr. R liked the fact that I am a physical therapist since I was already extremely familiar with much of what he was telling and that I will be a diligent patient with my "homework" after surgery. I will see Dr. R again two weeks after surgery to take my first post-op measurements and to assess my upper body range of motion. I am once again thankful for another knowledgable and personable addition to my medical team.
Thursday night was the first meeting for our "Young Adult Survivor" group at Karmanos. There are many wonderful support groups at Karmanos but there is not one dedicated solely to young adults who are cancer survivors. On a few occasions, I discussed this need with Kathleen, the social worker at the Weisberg Center, and how there are so many of us in our 20's and 30's that are treated there. Kathleen had always wanted to start a group like this but needed someone that wanted to coordinate it...insert my name here. :) So, I gladly signed on and we held our first meeting last night. It went very well and I am looking forward to seeing it grow as we provide support for each other and learn how to navigate issues that only young adults with cancer can truly understand. The group is open to anyone that is a young adult cancer survivor, whether they are treated at Karmanos or not, so if you know someone that would benefit from talking to others in a similar position, please send them our way. Our next meeting is Thursday, Oct 27 at 5:30pm at the Weisberg Center in Farmington Hills.
Saturday is October 1 which marks the beginning of Breast Cancer Awareness Month. The Detroit Free Press likes to do some special features in October dealing with breast cancer in general and to promote awareness, early detection, etc. So, to make a long story short, my name was passed along to the director of media relations at Karmanos and after talking with her, she then passed along my name and story to the Free Press. The editors receive stories from numerous people and hospital systems, but they ended up picking my story and deciding to interview me! So crazy, huh?! We really wanted to highlight the start of our new Young Adult Survivor Group at Karmanos in addition to telling my unique story of when breast cancer doesn't present as a detectable lump.
A couple weeks ago, a reporter from the Free Press visited me at home and we spent a lot of time together discussing all sorts of aspects of my life and this journey I am on. Then, a photographer followed me at the "In Living Pink" fashion show, and another photographer came to our home last Saturday to capture pictures of Mike and I. Although, I never wanted any attention in this way, if my story can further spread awareness and possibly help just one person, then it's totally worth it. So, check out the Detroit Free Press, this Sunday, October 2! I have no idea what will make it into the paper - it could be the tiniest little article ever, but keep your eyes peeled for it.
*As a quick side note, I want to clarify just one thing before you read that article. The great reporter that I have been working with has called me numerous times to check her facts and make sure she has all the details she needs. Well, the other day she was reading me a quote she received from Dr. F, my oncologist. It read something to the effect that I had an "excellent" response to chemotherapy and that I may undergo clinical trials in the future but right now I am in "remission". I was like, "REMISSION?!" What?! That is a huge word with a lot of different meanings and I have NEVER heard Dr. F use that word to me directly. I got all excited because hearing that word has always been my goal, but then I tried to calm myself down and realize what mind games different terminology and verbiage can play. Remission is defined as, "the state of absence of disease activity in patients with a chronic illness, with the possibility of return of disease activity." So, with that said - I am thrilled to hear Dr. F say this, because I take it as my disease is stable and not acting up and causing problems. BUT, please do not be mistaken that this means I am cancer-free. I don't want anyone to read this article and be confused and think that the cancer is gone, and "why didn't Meghan tell us that she beat it and she's in remission now?!" That's not exactly the case. I hope to be considered in "remission" for many, many years with the disease behaving like we want it to, that it's responding to my medications, and that there is not current "disease activity". I pray that I will eventually be told there is "no evidence of disease", which means that all of the detectable cancer cells have been killed and that no evidence of further disease can be picked up on my imaging tests....but I have a chronic disease with no known cure, and it will always be considered a part of me. I hope that makes sense and that I didn't confuse anyone any further.
Well, the surgery countdown is now at two weeks! Yikes! I meet with my plastic surgeon, Dr. M on Monday to finalize plans for the reconstruction side of the double mastectomy. I will then meet yet another new member to the team on Wednesday. Another Dr. R will be added to the gang and she will be my Radiation Oncologist at Karmanos. I won't start radiation until approximately 6 weeks after surgery but it will be nice to chat with her now and discuss our game plan. I will definitely update everyone after those two appointments once I know more about what the next steps of this journey will entail.
I am looking forward to a weekend consisting of dinner with friends, a breast cancer luncheon/fundraiser where I will get to meet a true inspiration for those living with metastatic cancer (I'll fill ya in next time on that), a Callaghan family reunion, Sunday brunch with some best friends from Chicago, and checking out this newspaper article. Looks to be a busy one...par for the course, right?! :)
My blog to keep you all