I have started writing a post a handful of times but always seemed to get sidetracked. I continue to have the best of intentions to write more, but truthfully, I haven't made it a priority. Don't give up on me though, friends! :) I still do want to get back to writing more. I have been pouring my energy into a lot of other healthy, self care outlets these days and it has been such a wonderful transition for me. I am taking more time to read some truly life changing books, listen to inspiring podcasts, commit to a daily intention and gratitude practice, spending time with a new therapist who I have connected so well with, take the most relaxing evening baths in our new jetted tub, and continue to make my physical health a priority by cooking healthy meals and exercising. I have committed to all of these things for several months now so I am feeling grateful that these practices have become true habits.
I always put a little pressure on myself to play catch up on the blog if it's been a bit since I last wrote. So, I'll do the Cliffs Notes version....
We had a really nice Christmas spent with our families and then a wonderful week of fun with our favorite Floridians, the Johnson family. They flew up right after Christmas and we spent some truly amazing days up north at the sweetest A-frame cabin in the woods. We checked off all of the best winter activities Michigan has to offer...skiing, ice skating, building a snow man, having an epic snow ball fight, and snow tubing...just to name a few. It was the most perfect week spent with four of our very favorite people!
The day the Johnson's flew back to Florida, I went right back to Karmanos and saw Dr. F, had my bloodwork checked, and received my first dose of a brand new medication which I will get in the form of an infusion.
Dr. F was happy to hear that I had been feeling well, and he said that my scans results showed that all spots were stable and behaving. Great news! Mike and I were very relieved to hear that. But after we received the written copy of my scan results, we felt slightly deflated. Upon reading the report, we learned that the cancer had spread to a few other areas that we never knew about, including another region in my back and my left hip. So, while Dr. F said that things were stable and nothing appeared active and new, this was news to us. We had already left our appointment so I didn't get to ask Dr. F more about it but I assume that these spots looked old on the scans and in turn, everything looked stable. But at some point the disease had spread to these areas and damaged my bones further. So, we felt like the wind was let out of our sails a little bit.
Overall, we were still very grateful for stability and that I was feeling well. But, it's discouraging to see that this sneaky beast continues to creep into other areas and further damage my body. Reading the reports was a little overwhelming and a few of my good PT friends also read them and shared the same thoughts....there is A LOT of widespread damage throughout my spine. I must be more patient with myself and make smarter decisions about not pushing my body too much.
I became incredibly sick later that night and into the early hours of the morning. I came down with the flu, fast and furious. It was a horrible few days with symptoms that I haven't felt in years. And although I didn't think about it at the time, I now wonder if it wasn't the flu at all...maybe it was the new infusion that I received earlier that day. I was taking to one of my nurses a few weeks later when I was in for some shots, and she said that those symptoms can sometimes be a reaction to that drug. I see Dr. F in a few weeks and will be due for my second dose of this medication. I am honestly nervous about getting it again but I'll wait and see what he recommends.
I am scheduled for another round of scans in about 5 weeks, so I will share an update after that. I have truly been feeling really good so I am hopeful that the scans will be uneventful.
Everything else is going well and we feel the same as everyone else living in the midwest...we are sick of winter by now. Ugh. The cold temps and grey days seem to last forever this time of year. But, Mike and I were just chatting the other night about how the days are getting longer and that brings hope of spring which is around the corner!
Thanks for the texts and calls to check in when I was a blog slacker. :) I'm always so grateful for the love and support as we continue to navigate life with this disease lurking in the shadows. And hopefully that's right where it stays, for a good long while!
oh! ps - we celebrated our favorite boy's 12th birthday! We love you so much, Wrigley!
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