That's right, folks....the breakfast menu for tomorrow morning is a whopping serving size of barium sulfate! Woohoo! Just how everyone wants to start off their Monday morning, right?
In case you aren't following my late night, exhausted attempt at humor...this means I am getting my next round of scans done first thing at the morning tomorrow. I will head to the hospital with Mike around 7:30am and we will likely be there until mid-afternoon getting a few different tests and bloodwork done. Downside - it's a long and exhausting day. Upside - Mike took the day off to go with me so at least I get an entire day with him by my side. We have both been so ridiculously busy lately that I am really looking forward to spending the day together, even if it means sitting in the lovely Nuclear Medicine Department all morning.
If you have some prayers, good mojo or healing thoughts you could send my way, I would sincerely appreciate it! It truly does ease the "scanxiety" knowing you are all cheering me on and sending positive thoughts into the atmosphere.
I have lots of updates it seems, especially about all of the hard work I have been doing to promote MBC and young survivors at the Komen Detroit Race for the Cure this year! It is late and I have to get to bed, but I promise to update soon. If I don't get a chance this week since it's going to be a nutty one again, please at least spread the word to anyone who is local, to please register for the Komen Detroit Race for the Cure this year and come see what we have been doing - especially for those women who are metastatic. Here is a little sneak peek at one of the great things we have in store for race participants.
Please join us next Saturday at Chene Park in Detroit or make a donation to "Team Malley Rally" here.
Thanks again for your thoughts and prayers. Won't see Dr. F until a week from Thursday for my results. Waiting is soooo....fun. (insert sarcasm here)
And because I can't possibly have a post without sharing some pics...here are some quick iphone shots of the fun we had together on Mother's Day while cheering on the Tigers!
What a beautiful Easter Sunday it was today!
I think it might finally be safe to say that spring has officially arrived. Thank goodness for that. When the sun is shining and I can feel the warmth on my face, it immediately boosts my spirits.
As I sat in church this morning and celebrated this holy day, I also couldn't help but reflect on how grateful I was to even be there. Three years ago, I laid in bed for days - including Easter Sunday because of how awful I felt after my very first round of chemotherapy. Sometimes it seems like yesterday - and other times it seems like another lifetime.
Last month I celebrated my 32nd birthday and two days later, I celebrated my 3rd cancerversary. It's always a very emotional time for me - full of reflection, gratitude and heartache. I can't believe all I have endured - physically & emotionally - and although it's rare for me to ever give myself a pat on the back, I will say that I am so proud of myself for all I have been able to get through. Some days are harder than others - but I have managed to get through each and every one of them. Here is what I shared on facebook on March 23rd.
"Three years ago today, my world was changed forever after receiving news of what felt like a death sentence. These past few years haven't been easy but I can truly say that I have experienced more joy and happiness than I ever thought would be possible again. I've learned to never give up hope and to make a difference with my life. "Life is too short" sounds like a cliche until circumstances force you to realize how true it really is. So make it count!
Thank you to my incredible family & friends for being there for me every step of the way. And to my amazing husband, Mike...thank you for never leaving my side- through the good and the bad. I couldn't do this without you and I thank God for you every day.
Thank you so much for all of the birthday love! I am truly grateful to be celebrating another year and growing older...a privilege denied to many."
The day before my birthday, I also had an appointment with Dr. F. We discussed a lot of different things, primarily related to a few different side effects I have been experiencing from my treatments. Nothing major - but of course it ended up in scheduling something like 10 appointments in the next 12 weeks. Ugh! I have had some drama since with a hematologist regarding my platelet count, but I'll fill you all in on that another time.
We also ended up scheduling my next round of scans, which will be Monday, June 2. I will then get my results on Thursday, June 12. So, start firing up those prayers. :)
I have lots of other updates including great improvements I am helping make at the Detroit Race for the Cure this year to recognize women with metastatic breast cancer and young women facing breast cancer, information about this year's Ride for the Cure, as well as information I am hoping to share after attending the Living Beyond Breast Cancer's Annual Conference for Women Living with Metastatic Breast Cancer which will take place next weekend in Philadelphia.
I will definitely try to update more soon. For now, thank you so much for your constant love, support and prayers. I am truly grateful and blessed to never walk this road alone.
Do you ever sit back and take a minute to reflect on exactly where you are in your life? Not in the sense of a geographical location, but where you are spiritually, psychologically, emotionally. How did you end up there? What events throughout your life led to this exact moment? Where would you be if you chose the other path when you came upon the fork in the road?
We have all ended up exactly where we are based on a series of choices - and those choices have likely been influenced by a number of different people and circumstances throughout our lives. I think one major point of this crazy thing called life, is to learn from those choices - to reflect on where they led you - and to decide if that is a path you should continue to travel down, or perhaps it is time to venture out and try something new.
Are you truly happy in this moment? If not, what can you do about it? Are there steps you can take to actively participate in the direction your life is heading? Or are you willing to sit back and watch it all unfold without attempting to change the angle of your sails and steer yourself towards what brings you joy in this world?
The only way that I have found to live with true happiness while facing this disease, is to try to turn it into something positive. To try to somehow make a difference - to educate, to support, to befriend, to create awareness, to speak out. If I simply sat back and wallowed in self-pity about this hand that's been dealt to me, I would be miserable. What good would that do for anyone? For me, Mike, my family, and my friends - it would suck everyone down into a deep, dark hole. Instead, I have tried to do what I can to turn this situation around and make something good come from it.
I am grateful that New Balance and Chris Pearson, the director of the Mid-Michigan affiliate of Susan G. Komen for the Cure gave me the opportunity to share my story last Sunday at the Race for the Cure in Lansing. I nervously stood on the steps leading up to the State Capital building and awaited my introduction. Just moments prior, I almost lost it as the opening ceremonies began and young dancers performed in front of the crowd. As I watched my mom and saw the tears stream down her face, I was reminded of how hard this is for everyone. But, I knew it was important that I take this opportunity to share my experience and try to make some kind of positive impact.
As Mike and I walked up to the podium, I felt a wave of nervousness wash over me. But after bobbling the first few words of my speech, I took a breath and simply spoke from the heart. I shared my story and emphasized what I believe to be the most important aspects of my journey - that it is a myth that young women are not affected by breast cancer, and that there needs to be more research and awareness for metastatic disease because no one dies from breast cancer unless they become metastatic. Research investigating why cancer cells metastasize and how to stop this from happening are the only ways we will actually find a true cure!
Thankfully, I was able to get through my entire speech without breaking down. That was one of my goals because once those flood gates open, good luck getting them closed for awhile! I want to thank Mike for literally and figuratively always standing right by my side, no matter what. There is no one I would rather travel down this road with than you! Thank you to my family and friends that came out to support me and to all of you that sent me well wishes and good luck vibes from afar. I am so thankful that I have received such amazing feedback from this - especially from my friends in the metastatic breast cancer community. I truly wanted to represent them well and speak on behalf of every single one of them.
If you would like to see my speech, please click on the link below. Looks like I can cross this one of my bucket list..."Share your story in front of 5,000 people!"
Here are a few pics from the day that Kyle captured...
I don't know what made Mike happier - listening to me speak or meeting MSU's football coach, Mark Dantonio and hearing him mention me in his speech to the crowd.
I love all of you guys - thank you so much for coming! Sorry we missed Aunt Erin, Mary, Melis, Brad and Payton in our group pic.
Well, tomorrow at 6:30am we are due to check in at the hospital for my next scheduled surgery - never a dull moment around here I guess. :) My surgery will begin at 8am and will last a couple of hours, followed by a couple of hours in recovery before I am able to head home. This is (hopefully) the last major step in my reconstruction process. Tomorrow, Dr. M will open up my scars from the double mastectomy and he will proceed to remove the tissue expanders and replace them with implants. He will then make some fine-tuning adjustments to ensure a proper fit, size and shape. Dr. M has informed me that I will likely be sore and down and out for a few days. I will have strict restrictions to avoid any lifting, carrying, pushing or pulling for 2 weeks at a minimum, and no returning to work for at least 4 weeks. Thankfully, momma nurse Jan and Mike will be here all weekend and into next week making sure that I am doing just fine. I am expecting surgery to go smoothly and that I will have an uneventful and speedy recovery.
I would greatly appreciate all of your thoughts and prayers as I head into surgery tomorrow - not just for me but for my family as they anxiously await the outcome, and for my medical team that will be taking care of me. Thank you all so much for your enduring support and we will be sure to update you soon once I am out of surgery.
Just a quick reminder to mark your calendar for some great events coming up next week...
On Monday, May 16th my amazing friends are going to be guest scoopers at Coldstone Creamery in downtown Royal Oak. Stop by from 6-9pm to get some yummy ice cream while also supporting the "Meghan Malley Rally" team for the Susan G. Komen 3 Day For a Cure. Coldstone is generously donating 100% of all tips and 10% of all sales to the 3 Day team. Ice cream + my beautiful friends + donating to an amazing cause = a night you don't want to miss!
The incredible parents and players of Mike's varsity baseball team have decided to turn their double header on Wednesday, May 18 into a charity game to also benefit the "Meghan Malley Rally" 3 Day For a Cure team! They have done an amazing job planning this event and it sounds like it will be an truly wonderful day. All of the players will be wearing pink, spectators will be able to purchase custom made t-shirts, and there will be other great things such as raffles, food, and hopefully lots of hits from the Kettering Captains! Come by at 4pm to support the Captains and the "Meghan Malley Rally" 3 Day team! Waterford Kettering High School is located at 2800 Kettering Drive, Waterford MI and the ball park is located directly behind the high school. If you are unable to make it but would like to donate to the "Meghan Malley Rally" please click here.
As if this wasn't incredible enough, another group of my awesome friends are participating in the Susan G. Komen Race for the Cure. This event will take place next Saturday, May 21 at Comerica Park in Detroit with opening ceremonies at 8am. My friends have done a fabulous job fundraising for "Team Malley", and I couldn't be more proud of them! Please feel free to head downtown to meet up with the team and participate in either a one mile walk, or a 5K walk or run - fundraising is not required to participate on the day of the event. To make a donation to "Team Malley" please click here, or for more general information on the Race for the Cure please click here.
I cannot thank each and every one of you enough for all of your time, effort and hard work to help raise money for the Susan G. Komen Foundation. This cause is obviously now extremely close to our hearts and raising money to help their efforts means so much to us. There is still a long way to go in regards to research for prevention, treatments, and cures - especially for young women with advanced stage disease, such as myself. It is my sincere wish that each dollar you are helping us raise will prevent another young woman from going through what myself and my family are going through right now. Thank you from the bottom of my heart.
My blog to keep you all