I am grateful that after almost five years of living with this disease, I have learned how to plan and dream again. But it's simply not the same. I have to add little disclaimers to my hopes and dreams now when Mike and I talk about them...."If I make it to 40, let's do _______", or "let's go on that trip next year...if my scans are okay." Have you ever seen "The Secret Life of Walter Mitty"? When I think and dream about the future, it's like a scene from that movie with these incredibly beautiful landscapes, bright and vivid colors....and then all of a sudden it's as if my dream balloon pops and I am struck in the face with the reality of living with an unpredictable disease, and my dreams turn to black and white, void of all the magic in that colorful fantasy world. No matter how hard I try, I cannot dream with the same reckless abandon that I once could.
Of course every situation has two sides to the story and I like to believe there is always a silver lining to be found. Over these last few years, I have come to appreciate living in the moment more than I ever did before. I have learned that I can still have dreams of the future, but instead of 10 or 20 years down the road, I talk to Mike about my dreams for next year and what we want our life to look like. I suppose it's all about learning how to handle the cards that are dealt to you. It reminds me of one of my very favorite quotes....
I was so happy when my family agreed with me last year that rather than exchanging gifts for Christmas, we should take a family trip together. I don't think I had been on a vacation with my brother since I was in the 7th or 8th grade! We all left for Mexico the day after Christmas and not only celebrated the holiday there together, but Mike and I celebrated our 7th wedding anniversary and we all rang in another new year! I am so grateful for this time together and it was a week I will cherish forever.
I am going to try to make more of an effort to keep up with the blog. Not only to share what has been going on with me, but also because it is a cathartic experience and I think it's important I make it a priority for myself. There are times when I am feeling down that it really helps me sort through my feelings, or look back on all I have been through in order to help give myself a little pep talk to keep on truckin'. I am also grateful it has served as a time capsule of sorts since this journey began and I want to make sure I contine that. I can't believe I only posted twice last year so hopefully I will take some time to document some of the great things that happened, like throwing out the first pitch at the Tigers Game! It was a pretty amazing experience!
So, now here I sit during my new favorite time of the day...the very early morning (of Saturday or Sunday in particular), before the sun rises. If I haven't run myself ragged the day before, I am able to crawl out of bed when Gracie wakes me at 6:00am. The house is dark, as is the entire neighborhood. After feeding the dogs, I start the fireplace and sit with a cup of coffee on the couch. This is the one time of the day where I allow myself to bask in the quiet, in the stillness that surrounds me, and be alone with my thoughts. It is in this time of the day that I enjoy the gift of another sunrise, another day full of hope and possibilities...and that in itself is enough...a dream that has already come true.
ps - Happy Valentine's Day to all of you...just an extra excuse to tell those you love just how much you appreciate them. Nothing better than that. So with that said, I hope you know how much I genuinely appreciate all of you who continue to be amazing friends and devoted family and those who keep us in our prayers even if you have never met us. Sending you lots of love today!